Chloe has been on a few different medications for a while now. In an attempt to get her off of oxygen, she's been getting a couple of different diuretics. And because she's on diuretics she's also getting sodium and potassium. These are pretty foul tasting medicines. While some babies tolerate them, Chloe finds them utterly disgusting and protests taking them by mouth. This becomes an issue when they try to remove her NG tube. If they try to sneak it in by squirting it alongside her bottle she gags, holds her breath, and desats. If the mix it in with her milk she refuses her bottle.
Today they decided that, since the diuretics aren't working to get her off of oxygen anyway, they'll stop them. And since she'll no longer be taking diuretics she'll no longer pee out all of her electrolytes they can also stop her sodium and potassium. The hope is that Chloe will be more successful in taking her feeds by mouth if she no longer has to take these unpalatable medicines with them. And also that the discontinuation of these medicines has no ill effect on her lung function.
Please pray with us for Chloe. It's almost taken her a month to become successful at eating. And while we're being ever-so-patient in letting her figure this out it sure would be nice if this new change worked. Our antibiotics seem to have worked. My mom is in town until January 3rd. We sure would love to have Chloe home soon... :-D
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I just love Chloe's personality! If she doesn't like something, she's not going to do it. Wonder where she gets that from??? :))))
ReplyDeleteWill keep Miss Chloe in my prayers. Give her a little hug for me!
PS - Can you add http://cobbfamily1.blogspot.com/ to your blog list. This blog will update when I post :)
Talk to you soon!
Come on Chloe! You can do it... You're the strongest lil' gal I know! :o)
ReplyDeleteThanks for keeping us posted, Cynthia! Love you guys!
-Leticia-
lol! Love how she voices her opinion!!! Glad your mom's there safely!
ReplyDeleteThat is so exciting!!! Can't wait to hear that she is home and keeping you up all night...wouldn't some normal newborn 'stuff' be great!!!
ReplyDeletePrayers to you Miss Chloe!
she should be a BLAST when you start feeding her baby food! ;-)
ReplyDeletewe've NEVER stopped praying... for her to grow strong, healthy and for her to come home. We love you and we're praying for you all!! right down to bluebell!!! Kiss all of them for us!
Chloe is always in my thoughts and prayers - hoping that everything will get figured out and she will be home very very soon. Daphne also hit a wall right before going home, and then when we least expected they kicked her out. I hope that Chloe can do well without the diuretic and yucky supplements. The less meds at home, the better!
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