Thursday, November 12, 2009

Day 81 - Look at that little mouth!

As of this posting Chloe has made it 20 hours without a breathing tube! They decided to do it yesterday and I wanted to be there when they did it. Fortunately, Dave had the day off for Veteran's Day (Happy belated Veteran's Day to all you veterans out there, by the way!) so I didn't have to wait until after dinner to make it to the hospital. I made it there around 4:30pm and they extubated her right around 5pm.

She seemed to be doing well right away but didn't like that her feeding tube was still in her mouth and was actually getting pretty ticked off at it. I was standing at her isolette with one hand on her head just watching her and after about an hour or so she'd had just about enough. She reached up for her feeding tube and, before I could open the other isolette door and grab her little hand, she yanked it right out. So the nurse moved her feeding tube (which goes down to her belly) from her mouth to her nose. Getting it in there was definitely NOT a fun procedure but I think Chloe will be much more comfortable in the long run. And as an added side benefit we get a full view of her beautiful little mouth. Look at how amazing she is!! You absolutely MUST click and enlarge this one!














Her upper lip is heart-shaped - I LOVE THAT! Her eyes are still puffy from the ROP surgery but that will go down soon. And her cheeks are still red from the neobar tape but I imagine that's faded by now, as well. I took this picture while the nurse was preparing her new feeding tube, so she's sans feeding tube here but she looks just about the same with it since it follows her canula tube and into her left nostril.















Ignore my hideous hands. After all the washing, scrubbing, disinfectant foam I'm using they look like crocodile hands. I just thought this would be a good one to get a better perspective of her size.
















Look how I've grown!
The smaller prints were taken on 9/11/09 and the larger ones were taken on 10/20. We are truly blessed!

12 comments:

Megan B said...

Oh this is just wonderful news! Praying she continues to do so very well on the new cannula. No trach for this kid, no WAY no HOW!! She looks just stunning in these pics; I want to rub her head...

melbhaber said...

Yaaaaay, Chloe. I was hoping and hoping for this post. I am so glad for you. And praying that the yucky ng tube will be next. She is truly beautiful.

meredith said...

I love, love, LOVE the open mouth pic. She is adorable!

Anonymous said...

Grammy is all smiles right now. Thank You,Dear Lord! I love you Chloe!

Audrey said...

Oh how exciting!! I love that little mouth! What a big day for Chloe! Congratulations!

Leticia Holberg said...

So amazing! I'm usually NOT the one crying much in the family, but here I am with a huge smile on my face and tears-a-coming! I love "hearing" the excitement in your post and seeing my beautiful niece! I couldn't be happier! Thank you, God!!!

Love you guys!
-Leticia

A Goldsworthy Note said...

That's so wonderful!!! I'm speechless and filled with joy. You know I am the one that shows just about every emotion through tears and right now is no different. Tears of happiness fill my eyes...I have to wipe them away just so I can keep looking at beautiful little Chloe's picture.
Love,
Valerie.

Anonymous said...

OH CYNDI.... SHE IS GORGEOUS!!!!
praise God for the beautiful works He has done in this angel!! I am so thrilled by the news and in awe of that sweet mouth.
Hug and kiss your girls for us!

Robin, Ally & David

Angela said...

WOOOOOOOOOHOOOOOOOO!!!! She is ADORABLE!!!! I am so happy for you and little Chloe!!!

Emily Williams said...

I am jumping for joy and Michael just asked me why I'm crying. Oh Cyndi, I am so happy that things are moving in the right direction. I know you all have a long road ahead, but please, take a moment and just revel in the fact that you have a beautiful daughter who is so very, very blessed.

And the VBS song Michael has been singing all day is so appropriate here: "I will not, be afraid, tho' trouble's out there, night and day. No I will not be swamped with fear since God is always, always, always, Yeah! he's always here! I don't need to worry cause My God takes care of me. He gives me life, he gives me breath, Yeah, everything I need. He's got all the power and His power sees me through."

God Bless you girl!!

Daxton's Personal Assistant said...

:):):):):):):):):)
A big fat huge congratulations! She's gorgeous!

lisaswendsen said...

Wonderful news! I have been praying for your sweet Chloe. Hoping things continue moving in this amazingly postive direction! she is gorgeous!

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