This past week and a half has been rough. Chloe was not herself for a good ten days. All she wanted to do was sleep. And when she wasn't sleeping she wanted to lay in my arms with her eyes closed. The weird thing was that she didn't show any other signs of being sick. She was eating, peeing, pooping, no fever. Nothing. I just kept telling myself she's growing and healing from surgery. Yesterday she finally snapped out of it. She's back! Smiling, interacting, playing, you name it. What a relief! She even has a couple of new tricks. She likes to hold her feet and she laughed and giggled when I was playing with her yesterday. Solana, Dave and I were freaking out! Such fun...
We went to Cincinatti for a surgery follow-up on Wednesday (almost two weeks ago) and her eyes looked good. Yeah! The doctor wanted us to keep Chloe on some pressure relieving drops (Pred Forte) and come back after two weeks. I wanted to start the contact lens process but the doctor said, "not yet." Two days later Chloe's top and bottom eye lids swelled up. After a very frustrating series of phone calls and being put off by the doctor in Cincinatti, who said her eye was fine two days ago, and her pediatrician I finally got a local opthamologist to see Chloe. Note: I'm dumping her original opthomologist because of his inability to communicate with me and asked the new one to see her. Boy was I glad I did that! This new Optho is AWESOME! He's been her doctor for a whole week and he's already called me on the phone four times! This is a BIG deal! I never get to talk to other eye doctors - only their techs and nurses. This guy takes the time to really get involved in his patient's cases. I like that. The only annoying thing is that I learned HE could have done Chloe's surgery here in Dayton. The old Dr. that I dumped obviously didn't want to refer me to him because he knew he'd lose a patient. That Dr referred us to Cinci implying that she couldn't have the surgery in Dayton because of her small size. Grrrr. The great news was that her sollen eyelids were a perfectly normal post-surgery symptom.
Awesome Doctor is very anxious to get a contact into Chloe's eye - as am I. (Reminder: her brain is still developing connections to her eyes. Without vision in that eye her brain may decided it's not worth the effort to connect to it - leading to lazy eye.) Had he done the surgery a contact lens would be in place by now. Unfortunately, we're stuck with Cinci Doctor for at least a couple more days. Awesome Dr. did comfort me, though: if he thought the extra days without a lens would have a detrimental effect on Chloe's vision in the long run he would certainly take over her case without a release from her surgeon.
Lesson learned. If you're unhappy with your doctor. Check out others. There is probably one out there who's a better fit for you. And don't assume the referral given is your best/only option.
In other Hendrickson news: Solana turned 5 on Tuesday the 27th. She had a butterfly party and was soooo cute! I'm loving my new combination of SleepyWrap and B tank. I can carry Chloe in the SleepyWrap and put her new little oxygen tank in a little backpack and Voila! We're mobile! You may wonder what happened with the whole, "Chloe-can-come-off-oxygen-Hip-Hip-Hooray!" thing... Well, nothing has changed. As anxious as I was to disconnect Chloe from her little leash I decided to wait until after surgery - no reason to push her while she's healing. She could probably be off oxygen by now. I'm actually the one holding her back. I'm just so scared to do it! It'll happen soon enough, though. I'm sure of it. I've started taking her off for meals. Baby steps.